The Saoirse Foundation- BUMBLEance Children’s National Ambulance Service
Kids Guide encourages you to Support the Saoirse Foundation. It is making positive life impacts for sick children and their families all across the island of Ireland.
The Saoirse Foundation was founded by Tony and Mary Heffernan in 2010 after their daughter, Saoirse, was diagnosed with Batten Disease (Neuronal Ceroid Lipofuscinoses – NCL) – a rare and fatal neurological condition. Tony and Mary were given no information about this disease and they had no idea what to expect for Saoirse and themselves, and did not know where to seek help. Continue Reading